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Hillary: Mom of three, one of whom has autism
 Ask me how to strap a giant whale to my minivan and drive 1600 miles home with it! I'll tell you how. Ask me to define the word sharing. It's different than what you might expect. Ask me how to get your child to learn there's more to life than pb&j. Wait, don't ask me that. Ask me what it's like to have an autistic child. I'll try to help you understand. Ask me to show you my Mom of the Year award! Oops, usually I'm out of the running for that about 10 minutes after getting out of bed.
Yet, it's all good. Sure, the paycheck is lost in the mail but I still wouldn't trade this life, quirks and all. In my posts, I'm hoping you'll find humor and honesty and that you'll be able to relate to my humble acceptance of motherhood's ups, downs and in betweens.
Welcome to my world!
November 8, 2009 — Hillary @ 2:55 pm
The events of this season, beginning around mid-September, have given me a firm belief that my household must be a repeated target of biological weapons. Due to illness, my three boys have collectively missed 24 days of school–yes, 24! And Adam’s part of that only counts for 2 days! That means 2 of my 3 boys have racked up 22 absences from their school. Sheesh! It’s only the middle of November! And Logan still isn’t going to school tomorrow! He and I will be headed back to the doc instead, which, by the way, could possibly be for the 8 zillionth time. I’m picturing the staff at my pediatrician’s office receiving holiday bonus checks that I may have actually signed. Through all of this, I must give a shout out to my boys and say thank goodness they are excellent students. If they struggled in school, I don’t know how they’d be on track to get promoted to a higher grade level next year.
And it’s not just been the boys. I managed to become one of the victims last week. I never get sick. If I do, it usually is a 24 hour thing that has me throwing up repeatedly every hour or so, nasty yes, but only lasting a day or two. What I had last week felt like something out of that movie with Dustin Hoffman that was out about 15 years ago, what was it called? Oh yeah, Outbreak. I never went in for the official H1N1 diagnosis but I wouldn’t be surprised if that’s what it was, and if it was, let me be the first to say that it is all that it’s cracked up to be and more. Even now, more than a week after first getting hit, I still don’t feel 100%.
Pretty much all I have to post about this week is illness. Yay! Try not to get too excited, right? It’s just that I really don’t know anything else right now. I’m too busy keeping track of who is taking what and when they last took it, who needs to go back to the doctor and who is possibly finally healthy enough to go outside. Last week, I actually almost gave my 9 year old Adult Robitussin because all the bottles seem to be just one big blur to me now. Fortunately I caught myself before I had another reason to call the after hours line. I also don’t bat an eye anymore at what the thermometer says. I’ve pretty much seen it all after this season and there have been times when I wouldn’t have been surprised if I could grill a steak on one of my sons’ foreheads.
Through all of this, I have managed to spend some time gathering insights and observations and so here they are, in no particular order. Let’s just call them 5 Random Things about Being Sick…maybe you can relate? Maybe you have a few of your own you’d care to share. Here are mine:
1. Having set a record for how many times one can call her pediatrician’s office in such a short amount of days, I am now more than a little suspicious that Dr. B’s office’s #1 policy is to first put callers on hold for 20 minutes in hopes that I’ll just decide it’s not really that big of a deal and hang up.
2. Speaking of suspicious, it wouldn’t surprise me if the local police haven’t been tipped off by the local pharmacy and are staking out my house waiting for the meth lab explosion. Sorry to waste your time, officers, I really am using all that cold medicine for its intended purpose!
3. Speaking of doctor offices, really, people, please stop giving me the evil eye when I come in with my coughing, lethargic child. Yes, I know that everyone is terrified of the Swine Flu, the Bird Flu, the Elevator Flu, the Forest Flu, the Whatever Flu…I’m sorry that I have to come here and ruin your child’s well visit. You have no idea how sorry! But until the good old days of house calls return, sometimes really sick people will end up in waiting rooms, too.
*Just to make sure that Uncle Bad Karma isn’t waiting around my house to bite me in the ass, I’d like to add this disclaimer that in no way am I making fun of the flu or the need to be proactive in preventing and treating it. I’m simply making an observation about people’s behaviors in doctor offices and buildings that contain doctor offices.
4. I’ve decided that it’s a good idea to just say “I don’t know” when my kids ask me what the doctor’s office visit will entail. Because it isn’t just about a shot anymore! Now they can add, “Will I have to put that breathing mask on?” (breathing treatment), “Will they stick that thing in my throat?” (strep test) and “Will it be the pink medicine or the white medicine?” (Penicillin vs. Augmentin, which, based on my kids’ reactions, must be similar to Bubble Gum vs. Rat Poison).
5. Someday when Adam is older and able to better communicate with me, I hope that he will accept my heartfelt apology for my psycho-screaming overreaction to catching him brushing his teeth with Logan’s toothbrush. It’s just that he’s been the healthiest so far and has managed to only have had 2 days of fever back in September. I just don’t know if I can start this all up again! In fact, I can’t. Adam, if you get sick, I’ll leave the numbers to Dr. B’s office, the nearest pharmacy, and also the local cab company by your bed. If you need me, I’ll be in the Bahamas.
So with that, I end my post and raise a white flag to this hateful army of germs. I’ve done all I can do I’ve fought a good fight, now please move on to another planet! We want our lives back.
• • •
October 28, 2009 — Hillary @ 8:28 am
I own a really great pair of kitchen scissors that my parents gave me for Christmas a couple years ago. They are unbelievably sharp and I wouldn’t be surprised if they could cut through my kitchen table if that’s what I wanted.They also can be taken apart so they can be washed or the blades sharpened.
And yesterday one half of the pair was missing.
I noticed it right before dinner. I opened a kitchen drawer and there sat one half of my kitchen scissors. I opened the dishwasher to see if I’d accidentally left the other half inside. Nope. I checked all the other drawers to see if it had been placed mistakenly in the wrong one. Wrong again. Hmmmm.
Then I knew. Adam had taken the missing blade. This is a new game of his. He likes to “help” and “fix” and “have that”. Those are phrases he is able to use pretty efficiently now. He’s also, at almost five, tall enough and smart enough to reach into cabinets and drawers and also manipulate locks and pretty much anything that the childproofing department of Target sells to keep toddlers away from dangerous household items.
He’s also sly enough to run off with these things and hide them, kind of like Helen Keller locking Anne Sullivan in her room and hiding the key. It’s a game. It gets him attention. It probably makes him feel powerful that he can outsmart all of the people in his life that, to him, seem to be only capable of saying “NO!” and “DON’T TOUCH!”.
For the most part, it’s just been a real inconvenience. He’s hidden his brothers’ Nintendo DS systems a couple times. He occasionally has hidden his shoes outside in the yard. He ran off with all of the scotch tape one day which wasn’t really a problem until I had to wrap a birthday gift. I just borrowed some from a neighbor.
But now a really sharp blade was missing and if I was correct in suspecting Adam, this was just all sorts of wrong. And while Adam, at almost five, possesses a fairly impressive vocabulary and even the ability to spell and write much of his vocabulary, it is just that. Vocabulary. You can ask him his name and he will tell you “Adam.” You can ask him what color Spongebob is and he will tell you “yellow”. Yet asking him things like how was your day at school, where did you hide the kitchen scissors and most importantly, do you understand the urgency of this situation…well, I don’t expect to get far. Autism gets in the way of these kinds of conversations.
Not that I wasn’t going to try, however. The next morning, I was on a mission.
“Adam,” I began as patiently as I could, because freaking out usually freaks him out. “Do you see this?” I held up the blade. “Do you know what this is?”
He grinned big. “Scissors!”he proclaimed proudly.
“Does Adam play with scissors?”
“Adam cut with scissors!”
“What does Adam cut with scissors?”
Adam looked at me, then stuffed a bunch of Fruit Loops in his mouth and started rambling on about how b-u-s spells bus and how he’s going to be a skeleton for Halloween.
“Adam!” I forced eye contact with him. “Where are the other scissors? See these?”I showed him the half pair. “These are in this drawer. Where are the other ones?”
Adam smiled. Ate Fruit Loops. Turned the TV on and off. I didn’t know what to do. Missing Nintendos are one thing. A four year old playing with sharp objects is quite another. Dammit. Come on, Adam, help me out here. How can I get you to understand??
“Adam,” I tried once more, “Mommy wants these scissors. Can you go get them for Mommy? It will make Mommy so happy if you bring me the scissors.”
“Watch Spongebob?” Adam asked as he slid down from his kitchen stool and ran off, leaving me shaking my head and wondering in exactly which way this situation was going to end badly.
Five minutes later, I turned my head to see Adam coming downstairs, his favorite doll in one hand, the missing half pair of kitchen scissors in the other. He stopped and gave me a mischievous grin and I have to say, it made me think just a little of Michael Myers in the beginning of Halloween. I immediately ran over and took them from him before we had any chance of recreating that scene.
“Adam!” I hugged him. “Thank you for bringing me the scissors! Good job! You did it! These scissors need to stay in the kitchen. These are Mommy’s scissors!”
Adam laughed, looked me straight in the eye and said, “Mommy so happy!”
Yes, Mommy so happy. Mommy so relieved. Relieved because I had my scissors back and I’d just averted a potential seriously bad situation. A million different bad situations if you stop to imagine…
And also so relieved and happy because I’d just had a breakthrough moment with my autistic son. Sometimes they come in the most unsuspecting and unusual ways.
If only Anne Sullivan was around to give me a high five…
• • •
October 17, 2009 — Hillary @ 4:13 pm
Logan and his neighborhood buddy Nick scored themselves some Walkie Talkies this afternoon and honestly, it was as if they had struck gold.
I don’t know where the things came from–it could have been any one of the garages to which they have access in our culdesac–but the radios worked very well and you’d have thought someone had handed the boys equal rights to the Holy Grail.
I happened to be outside at the time because Adam was out there as well. This gave me the opportunity to witness the spy games being played and also the creativity of which these two fine young gentlemen are capable. They did not disappoint.
“Agent N, this is Agent L confirming an enemy sighting due west. Enemy is armed, proceed with caution,” Logan alerted Nick to the danger of 7 year old Ryan lurking on the deck with his Star Wars laser gun.
“Roger that, Agent L. Enemy in sight. Capture coming right up.”
“Return enemy to secret dungeon.”
“Roger. Mission completed.”
Then suddenly it was as if the red tape of good taste and innocent dramatic play was snipped away and a light bulb of crassness exploded like a bomb into their brains.
“SPLLLLLLTTTTTTTHHHHHHH!!!!!!!” came the sound of Logan spitting through the airwaves. Both boys collapsed on the ground in amused hysterics.
“Go really far away!” Nick commanded. “I want you to hear this from really far away.” Logan obeyed, heading around to the backyard while Nick remained in the driveway.
“BLLLLLUGHHHHRRRP!” belched Nick impressively as if he’d spent the afternoon chugging pitchers of beer at the nearest bar. “Did you hear that?! I just burped into the Walkie Talkie!!”
“FARTFACE!” squawked the reply.
“FFFFFFFRRRRRRRT! I JUST FARTED INTO IT!”
And so it went on for several more minutes, with each boy taking his turn at making whatever kind of disgusting noise into the speaker he could coax out of his body, each trying to outdo the previous attempt. When they ran out of noises (or when possibly one of them felt an esophagus was beginning to errode), they turned their efforts into accusing each other of various unforgivable third grade sins.
“YOU KISS GIRLS AT RECESS!!”
“YOUR UNDERWEAR SHOWS DURING LIBRARY AT SCHOOL!”
Amazingly, this was all in good fun. I feel kind of like Logan had some of the greatest 30 minutes of his life. I also know that there are many moms who would have put a stop to it right away. I, however, am just used to this type of entertainment that young boys seem to crave, I know they just need to get it out of their systems, and I also am fairly confident that turning a blind eye to it will not result in either of them shouting these things at their teachers (or their bosses) someday.
So I simply took it for what it was: another moment where a child in my life gives me something to shake my head and laugh about. And write about!
Uh…thanks for that?
• • •
October 8, 2009 — Hillary @ 8:22 am
My morning chores checklist yesterday included the following:
Beds made? Check.
Dishwasher loaded? Check.
Laundry started? Check.
Beanstalk growing out of Logan’s bathroom sink? Check.
Wait a minute. Really? Really? Yes, really. A beanstalk was growing out of my 9 year old’s bathroom sink.
Unfortunately, the beanstalk didn’t lead to a magic castle in the sky, where all that stood in the way of lifelong golden riches was a quick battle with Andre the Giant and the ‘napping of his pet goose. I would have been up for that, sure. That would have been really cool! Can you imagine? Who could ever argue again that there’s no excitement in a stay at home mom’s life?
Actually, however, the beanstalk was pretty small and lame but it was a beanstalk nonetheless and it was growing in my son’s sink.
So I simply plucked the beanstalk from the drain, pulled out the drain stopper, gave it a good rinse, replaced the stopper back in the sink and made a mental note to have a conversation with Logan later about the moral of this almost fairy tale.
And that moral would be Don’t dump your hamster food down the bathroom sink, as simple science dictates that seeds+water+a little bit of dirt=vegetation.
Unless, of course, they are magic seeds! Then, my boy, you’d have my blessing to plant away.
• • •
September 28, 2009 — Hillary @ 9:10 am
On Sunday morning, I woke up remembering that I’d promised the boys we’d go for donuts. I was Army Wife this weekend so it was just the 3 boys and myself.
The boys were not keen at all on the idea of going to a grocery store to pick out donuts. They wanted to go to a real donut place (probably because that removed the chance that any shopping would be a part of the adventure) so we headed to Lamar’s. Apparently everyone else in the area had the same idea. The line stretched outside of the tiny shop.
Adam was already a little edgy because I’d nixed the idea of allowing him to bring his favorite toys du jour (plastic, light up spiders, don’t ask) out of the car and honestly, I’m not quite sure why I nixed the idea in the first place. In fact, I sent Logan back to the car to get them and once they were back in Adam’s possession, we actually waited in line like normal people, free of drama.
That is, until an overly friendly gentleman standing behind us couldn’t resist bending down to Adam’s level, getting right up in his face and bellowing, “HEY THERE BIG GUY!! WHAT DO YOU HAVE THERE?! SCARY SPIDERS, HUH? HOPE THEY DON’T BITE YA!”
I wish sometimes I could hang a sign around Adam’s neck that read I have autism. I like to be left alone. Maybe I’d even go into more detail. Something like Because I have autism, I have trouble keeping it together in public places. I’m trying to do what I’m supposed to do, but it’d be best for all of us if you’d refrain from getting in my face and talking loudly.
The sign would have been helpful because after that man got in Adam’s face, we weren’t Lamar’s customers anymore, we were prisoners in Spectrum Meltdown City. Adam became completely unglued, throwing his spiders at the man, running up to the donut case and banging his head on the glass. After several “Oh Mys” from the other patrons, most eyes turned to me, looking to see how I’d handle the situation.
Here’s where I needed my own sign. It would read My son isn’t an undisciplined brat, he has autism. I’m not a bad mom, oblivious as to how to handle my kids. If that were either of my two other normal children, you betcha they’d never act like that again after I was through with them. The rules are different with Adam. The best I can hope for is that this line will move quickly. Sorry for the trouble. You have no idea how sorry.
Truth be told, the whole event lasted about 5 more minutes, even though it felt like an hour. We got our donuts (a dozen of them, all covered with all kinds of crap. Clearly Logan and Ryan took advantage of the situation!) and were rung up quicker than you could say long johns, as the cashier was smart enough to see the sign that read GET US OUT OF HERE NOW!
Back in the car, headed home on a beautiful fall morning, all was calm, all was bright, spectrum meltdown a thing of the past. I had three happy boys with visions of donuts dancing in their heads.
And on the radio, the song Wonder by Natalie Merchant began to play.
Was that a sign?
• • •
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